Huntington's Disease Society of America

Cause Area

  • Board Development
  • Community
  • Health & Medicine

Location

PO Box 14Chelmsford, MA 01824 United States

Organization Information

Mission Statement

To improve the lives of everyone affected by Huntington’s disease and their families. The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. The HDSA Maine Affiliate provides support to the local Huntington's Disease (HD) community by hosting fundraisers, education days and outreach programs. HDSA is dedicated to improving the lives of everyone affected by Huntington's Disease and their families. Our Vision- A world free of Huntington's Disease.

Description

From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.

"This Land is Your Land"...

In 1967, the dynamic and determined Marjorie Guthrie launched an all-out assault on the disease that would soon claim her husband, music legend Woody Guthrie, and threatened their three children. Her extraordinary efforts turned her into a global voice in the fight against Huntington’s disease.

With over 50+ Volunteer led Chapter & Affiliates, volunteers are supporting families impacted by HD locally and across the nation!
Every year at our National Convention, these volunteers come together to learn about HD science and the movement they are making! We would love to welcome new faces and ideas.

Reviews

Would you recommend Huntington's Disease Society of America?
1 review Write a review
by Becky J. from Medford, MA (November 8, 2017)
Had a great experience volunteering for their walk in South Boston and would definitely volunteer for them again in the future.

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