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The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington's disease and their families. To promote and support research and medical efforts to eradicate Huntington's Disease. To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease. To educate the public and health professionals about Huntington's disease.
The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 200,000 at-risk in the United States. The Society is comprised of 54 local chapters and affiliates across the country with its headquarters in New York City.