• ORGANIZATION PROFILE
  • Philadelphia Multiple Myeloma Network Group Philadelphia Multiple Myeloma Network Group

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Mission Statement

Philadelphia Multiple Myeloma Networking Group’s (PMMNG) mission is to be an ongoing resource for myeloma patients, their families and friends.

  • Provide up-to-date information, about the disease and its treatment options
  • Collect and maintain a library of information on resources for medical, financial & counseling needs
  • Provide members with monthly newsletter via email or US mail
  • Sponsor fundraising events (Miles for Myeloma 5K)
  • Offer support, shared experiences and hope

Description

Who We Are

The PMMNG was formed in 1995, and is a diverse group of myeloma patients, their caregivers and support persons.

From an original meeting around a kitchen table, the founding members led the organization to find more appropriate meeting space, an experienced group facilitator and many more members.

Phil Falkowitz and his wife, Barbara, along with Marilyn Alexander and her twin sister, Sharon, mobilized efforts to include patient education, political advocacy and fundraising for Myeloma research. Meeting notices spread throughout the Philadelphia region and relationships with local cancer organizations were established.

In 1999, the growing group found its current home at the Ralston House. The membership list grew to upwards of 300 members and in 2009 the PMMNG was granted 501(c)(3) non-profit status. At present, the PMMNG is led by a Board of Directors and is known in the region as a safe haven for families dealing with myeloma.

Certainly we wish there were no need for a group such as ours, but we take comfort from the fact that we have been able to reach and assist so many more people than the small
group who met more than 15 years ago.

Group Facilitators

Maddie Hunter: maddie@hunterunlimited.com
Marilyn Alexander: malex19115@comcast.net

Direct Contact

PMMNG: pmmng1@gmail.com

Medical Advisors

Dr. Edward Stadtmauer and Dr. Dan Vogl,
Abramson Cancer Center, University of Pennsylvania

Website

http://philadelphia.myeloma.org

Contact

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