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Mended Little Hearts, a program of The Mended Hearts, Inc., lets parents know that there is hope and that they are not alone.
Mended Little Hearts was created to help restore hope through a loving community of people with shared experiences.
Mended Little Hearts is a program of the Mended Hearts, Inc. Mended Hearts has been providing hope and support to heart patients and their families since 1951, when four heart patients in Boston, Massachusetts came together to discuss their heart surgery experiences. They quickly realized their shared stories provided both hope and healing in spite of their circumstances. In 2004, Mended Hearts local and national leader, Tita Hutchins, recognized the unique need for children with congenital heart defects and their families. The earnest desire to provide support to the "littlest heart patients of all" led to the formation of the first two Mended Little Hearts groups - one in Fresno, California and one in Hollywood, Florida.
Since 2004, Mended Little Hearts has provided families and caregivers of children with heart defects and heart disease an outlet through which they can find answers, education, resources and access to local-based peer-to-peer support - building hope for the future. With Mended Little Hearts, children with congenital heart defects (CHD) and their families find strength and understanding from those who share the same experience.
Mended Little Hearts currently offers several programs and services to help families including:
- Group Meetings
Nothing can replace in-person connections with others facing a similar journey. Mended Little Hearts group meetings provide invaluable peer-to-peer interaction and a forum for families to make personal connections with each other and the medical community. Children with heart defects can meet others like them, with similar scars, and know that they are not alone. Parents can meet other parents and caregivers who have similar joys, fears, concerns and hopes. Check out our Events & Meetings page to find a group near you!
- Accredited Visiting
Mended Little Hearts trained and accredited visitors visit with families who have children with congenital heart defects in hospitals, by phone and online. The volunteers are family members who have experienced congenital heart defects firsthand. Visits provide support, information and outreach uniquely delivered by a parent who has experienced open-heart surgery or other heart procedures with their own child.
- CHD Awareness Initiatives
Most people are unaware that congenital heart defects are the most common birth defect in the United States. Mended Little Hearts works to promote education and awareness to those who may be impacted by congenital heart defects so they are prepared if their child is diagnosed. The instruction includes signs and symptoms, which has the potential to save lives when parents are able to recognize symptoms in time to help their child. Mended Little Hearts also creates awareness of the need to support congenital heart defect research so more children can live healthy lives and become healthy adults.
- Health Education to Communities
Mended Little Hearts groups help to educate people in the communities. Cardiovascular professionals and other professionals in the community provide helpful information at Mended Little Hearts group meetings, through workshops, seminars and at health fairs. Families receive essential information about treatment options, research innovations, social support resources, and other topics that make navigating the diagnosis of heart defects less frightening.
- Ongoing Communication
Mended Little Hearts members interact with families through Internet and phone outreach as well as by providing Web resources. Hospital stays and seclusion in the home can leave families who have children with congenital heart defects feeling helpless and alone. Through Mended Little Hearts, caregivers have access to ongoing personal support from people who understand.
Mended Little Hearts advocates on issues that help families with CHD, such as newborn screening, advances in research and improved surveillance of those impacted.
Mended Little Hearts Advocacy (Link to Advocacy here)
Congenital Heart Futures Act
Pulse Oximetry Advocacy
- Melanie Toth
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