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We are the Washington State Chapter of the Huntington's Disease Societyof America (HDSA). We offer support to those families affected by Huntington’s disease in both Western and Eastern Washington. We align ourselves with the mission of our national HDSA: To improve the lives of people with Huntington’s disease and their families.
In support of this mission, we hold two educational events annually - a research symposium and a convention. We offer a number of support groups for those affected by HD, many with professionally trained facilitators. We employ a part time social worker who works for the chapter, helping people find services and placements when needed. We also keep an updated resource directory on line so that others can seek out help on their own. We are in the process of trying to create a network of physicians who will be knowledgeable and able to treat patients suffering from Huntington's Disease. Finally, we coordinate advocacy efforts within the five states and support national legislation which will benefit individuals suffering from Huntington’s Disease.
- Melissa Jeng
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