• ORGANIZATION PROFILE
  • Cystic Fibrosis Foundation of TN Cystic Fibrosis Foundation of TN

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(36.0751,-86.7593)
 

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Mission Statement

Our Mission is to find a cure for cystic fibrosis and to improve the quality of life for people living with the disease. We accomplish this by funding life-saving research and working to provide access to quality care and effective therapies for people with CF.

Description

The Cystic Fibrosis Foundation (CFF) was started by parents of children with cystic fibrosis who were committed to improving the outlook for their children and for future generations. Their vision continues, and money raised for research has brought major advances in care. Over the Foundation's existence, life expectancy has increased from preschool to the mid 30s.

SmartMoney magazine of the Wall Street Journal has consistently ranked the CFF as a charity "that won't waste your money."

The Tennessee chapter of the CFF organizes numerous fund-raising events throughout Tennessee each year to support its programs. These programs include:

Patient Care - The CFF funds and accredits CF care centers across the country, including one at Vanderbilt University in Nashville, Le Bonheur Hospital in Memphis, T.C. Thompson's Children's Hospital in Chattanooga and Children's Memorial Hospital in Knoxville. At these state-of-the-art clinics, patients have access to a multidisciplinary team who work together to make sure every CF-related issue is tackled proficiently.

Research - To find better treatments and a cure for CF, the CFF supports a wide range of cutting-edge research projects. Currently, over 20 therapeutic drugs are in various stages of clinical trials - many of which, if approved, could dramatically improve the quality of life of the CF patient.

Education - CF demands time-consuming daily regimens for optimal health. For patients and families, an important weapon in the battle against CF is to be well-educated. Care Center staff make instruction a part of each clinic visit. The Foundation also works to educate the community about CF through events, printed materials, and social media advertising.

Website

http://tennessee.cff.org

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