• ORGANIZATION PROFILE
  • Spina Bifida Association of Central Florida Spina Bifida Association of Central Florida

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Mission Statement

The mission of the Spina Bifida Association of Central Florida is to promote the prevention of Spina Bifida and enhance the lives of all affected.

Description

Spina Bifida is a defect of the spinal column resulting from the failure of the spine to close properly during the first month of pregnancy. Spina Bifida may cause varying degrees of paralysis, loss of feeling in the lower limbs, and incontinence. It is usually accompanied by the accumulation of fluid in the brain. This birth defect results in a lifetime of need for medical surgical interventions. For many, the total lifetime cost of an infant born with Spina Bifida can be over $1 million.

Very few people are aware that Spina Bifida is the number one disabling birth defect. The statistics are devastating. Each day, an average of 8 babies is born with Spina Bifida or a similar birth defect of the brain and spine. Each year, about 3,000 pregnancies are affected by these birth defects. While Spina Bifida is a life-altering birth defect, it does not have to be a life-ending birth defect. Children with Spina Bifida can conquer their disabilities to become successful individuals participating in all aspects of life. With the appropriate educational, social, and medical support, these individuals can become vital parts of our community.

An estimated 70,000 people in the United States are living with Spina Bifida. Persons with Spina Bifida can live full, productive lives, but face numerous challenges. SBACFL was founded in 1975 to provide support, information, education, recreation, and advocacy for individuals with Spina Bifida and their families. SBACFL also serves as a source of information for affected families and others in the Spina Bifida community. We are supported by special event fundraising, contributions from organizations, and the general public.

Website

http://www.sbacentralflorida.org

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