• ORGANIZATION PROFILE
  • Scleroderma Foundation of Southern California Scleroderma Foundation of Southern California

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(34.00983,-118.39071)
 

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Mission Statement

Our Three-Fold Mission of Support, Education and Research

Support: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals and educational information.

Education: To promote public awareness and education through patient and health professional seminars, literature and publicity campaigns.

Research: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Description

The Scleroderma Foundation was founded more than thirty years ago with the threefold mission of research, education, and support. The Foundation addresses the needs of the Scleroderma community to learn about this disease and how best to deal with it. Scleroderma is an autoimmune connective tissue disease affecting blood vessels and collagen in the human body that can result in debilitating effects. Some of these effects include hardening of the skin which causes contracture of the fingers and toes, and tightening of the skin of the face and chest. It also can cause serious internal complications that can become fatal. There is no way to screen for this disease, nor is there a cure. The Scleroderma Foundation of Southern California is an affiliate of the national foundation and serves patients and caregivers in six counties of Southern California: Santa Barbara, Ventura, Kern, San Bernardino, Los Angeles, and Orange County. The SoCal Foundation has nine support groups throughout the region which provide educational programs and critical peer support. Additional patient services include regularly scheduled teleseminars, education days, e-newsletters, published newsletters, and in-service days at medical centers and in its offices in Culver City. The SoCal Foundation raises funds for its own patient education and support services, and for the critically needed research into the disease and its many complications.

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