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We are devoted in promoting awareness, support and research for this rare genetic disease including patients, families, friends and healthcare providers. Creating a communication network among families and identifying sources of medical care and social services.
CADASIL Together We Have Hope ensures that the increased knowledge and awareness for this disease will be always be updated as we receive it. We are totally dedicated in mailing out newsletters, information brochures etc. to patients families and doctors alike. We will help others get diagnosed and continue to push for cost effective methods to aide with diagnosis. This organization will recommend doctors who know about CADASIL and bring CADASIL families closer together with other CADASIL families. We will keep you up-to-date with the current research that is going on around the world, any treatments or eventual cure. This website for CADASIL is known worldwide. In the year 2005 there was 269,565 hits were documented
- Billie Duncan-Smith
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