Huntington's Disease Society of America

Description

The Huntington's Disease Society of America (HDSA) is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington's disease.

Huntington's disease (HD) is a fatal, degenerative brain disorder that devastates families for generations upon generations -- emotionally, socially and economically. HD slowly diminishes one's ability to think, eat, talk, walk and reason, they become entirely dependent upon others for care. Symptoms typically appear in the prime of one's life between 30 to 50 years old, however symptoms of Juvenile HD have been seen in children as young as two years old.

More than 30,000 people in the United States are currently diagnosed with HD and over 250,000 people are at risk. Each of their siblings and children has a 50 percent risk of developing the disease. HD does not discriminate and affects all ages, genders, races, and ethnicities. Currently there is no cure and only one FDA-approved treatment for one symptom of the disease.