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Genetic Alliance increases the capacity of advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. We build communication and mentoring networks, design and sponsor rigorous training courses, and provide infrastructure that strengthens and empowers our 600 member organizations. We are committed to capacity building in all communities. The technical assistance we provide to advocacy organizations results in measurable growth: increased funding for research, access to services and support for emerging technologies. For more information: www.geneticalliance.org
With an 18-year history as a 501(c)(3) not-for-profit organization, Genetic Alliance identifies solutions to emerging problems and works to reduce obstacles to rapid and effective translation of research into accessible technologies and services that improve human health
The board and staff of Genetic Alliance empower individuals and families living with genetic conditions by promoting:
- Public participation in informed dialogue
- Access to quality resources essential for informed choices
- Leadership development within advocacy communities
- Involvement of consumers in public policy and healthcare discussions
- Collaboration with diverse communities
- Kim Puchir
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