• ORGANIZATION PROFILE
  • Pulmonary Hypertension Association Pulmonary Hypertension Association

Causes

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(40.75047,-73.980606)
 

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Mission Statement

To find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness

Description

Pulmonary hypertension (PH) is high blood pressure in the vessels of the lungs and can lead to heart failure. There is no cure. In 1985 patients had a 50% chance of surviving 2.8 years past the date of diagnosis, but thanks to new treatments, prognosis is improving.

Research - PHA funds cutting edge research, committing more than $12 million to researchers looking for methods for early detection, new treatments to enhance and extend lives and ultimately a cure.

Support - PHA offers support groups across the country, online communities, a team of mentors who provide email-based support and a Patient to Patient Support Line.

Education - PHA delivers education via patients' computers and mailboxes and in face to face settings. Topics range from living with PH to insurance issues and everything in between. PH-treating medical professionals also benefit from an array of educational and networking opportunities provided by PHA.

Advocacy - PHA advocates for legislation that positively impacts the lives of PH patients and has secured significant federal funding for PH research and awareness initiatives.

Awareness - The voice of the PH community is built on the personal stories of thousands of patients, caregivers, friends and medical professionals. PHA provides resources to share stories online, with the media and in the community.

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