Trisomy 18 Foundation

Cause Area

  • Advocacy & Human Rights
  • Children & Youth
  • Health & Medicine
  • People with Disabilities
  • Women

Location

4491 Cheshire Station PlazaSuite 157Dale City, VA 22193 United States
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Mission Statement

The Trisomy 18 Foundation envisions a world where Trisomy 18 is a preventable and treatable condition and all parents have access to compassionate, knowledgeable care that respects the humanity of their child diagnosed with Trisomy 18.

Trisomy 18 Foundation's Mission is to work toward a better future for families by:

guiding the search for a cure and treatments
educating and supporting medical professionals serving affected families
creating a caring peer-family network to offer affected families the information, guidance, and emotional support and community they need to make "informed" decisions for their child and their family

Description

Our organization's mission focuses on research, advocacy, support programs and services for families coping with learning about a diagnosis of Trisomy 18 for their child in pregnancy or after birth.

Trisomy 18 Syndrome is the second most common chromosomal disorder diagnosed in pregnancy (Down's Syndrome is the most common) and affects 1 in 3000 live births annually. It affects many, many more families in pregnancies that result in stillbirths in the late 2nd or 3rd trimester of pregnancy.

For children born with Trisomy 18, it is a condition linked with high rates of:

  • heart defects and neurological problems
  • growth retardation
  • mental retardation
  • feeding difficulties

Although 90% of babies born with Trisomy 18 will not survive to see their first birthdays, there are children and adults surviving into their teens, 20s, and 30s.

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