• Cystic Fibrosis Trust Cystic Fibrosis Trust


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Mission Statement

There is no doubt that Cystic Fibrosis affects almost every aspect of a person's life, but it should neither define nor restrict them. We are working towards a future where a person's life chances and aspirations are not compromised by having CF.

We invest in high-quality research to bring forward new treatments for CF and work with healthcare professionals - from doctors and nurses to physiotherapists and dieticians - to ensure excellent, sustainable care, regardless of where people live.

We are there for people with CF and their families whenever they need us. We offer them support, advice and information through our helplines and through our publications and online services.


What is Cystic Fibrosis?

  • Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
  • It is caused by a faulty gene that controls the movement of salt and water in and out of the cells within the body.
  • Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
  • Over 9,000 people in the UK have Cystic Fibrosis.
  • If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
  • Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
  • Over 95% of the UK CF population is Caucasian, but CF affects many ethnic groups.
  • Each week, five babies are born with Cystic Fibrosis.
  • Each week, two young lives are lost to Cystic Fibrosis.
  • Currently half of the CF population will live past 41 years of age, and improvements in treatments mean a baby born today is expected to live even longer.


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