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Children born today with Cystic Fibrosis now live with this inherited chronic disease very differently than someone born just a few decades ago, when the life expectancy was less than 10-years-old. With a current median expectancy of 37 years, CF affects over 30,000 individuals in the United States. While research resulting in new understanding, medications and treatments has made this possible, exercise and an active lifestyle is universally recognized as beneficial to living longer and stronger with CF. People with this chronic illness are primarily plagued with severe lung congestion, digestive difficulty, CF related diabetes, depression and emotional isolation. Risk of transmitting multi-resistant bacteria between patients prevents people with CF from coming together in camps or fundraising efforts. Therefore, CFLF promotes active lifestyles, sports and outdoor enjoyment on an individual basis through Recreation Grants that also incorporate mentors.
The "Champ's Challenge for Cystic Fibrosis" is an annual fundraising event to benefit the CFLF that raised almost $40,000 in 2011. Proceeds are used to provide people across the US with financial support in the form of Recreation Grants to access healthy and active lifestyles. To date, over 150 people with Cystic Fibrosis across the US have received direct assistance from CFLF totaling over $100,000 in direct financial assistance toward recreation based exercise activities.
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