• ORGANIZATION PROFILE
  • International Rett Syndrome Foundation International Rett Syndrome Foundation

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(39.307632,-84.46976)
 

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Mission Statement

The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.

Description

ELEMENTS OF MISSION RESEARCH: The IRSF will coordinate, cultivate, accelerate, and fund research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort.
FAMILY SUPPORT: The IRSF will assist families of individuals living with Rett syndrome by providing them with connections to critical and useful information, programs, services, and support from diagnosis to day-to-day life.
ADVOCACY & AWARENESS: The IRSF will advocate for and raise awareness about individuals with Rett syndrome so the scientific and medical community, policy makers, educators, care givers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals dealing with Rett syndrome on a daily basis. ACCOMPLISHING THE MISSION FUND DEVELOPMENT: To accomplish this core mission, the core priority of the IRSF’s leadership will be effective, assertive, comprehensive, and strategic fundraising.
FISCAL RESPONSIBILITY: The IRSF will operate in accordance with those generally accepted principles necessary to maintain a Four Star Charity Navigator rating

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