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To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
Our mission: To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity. RESEARCH
Rettsyndrome.org will coordinate, cultivate, accelerate, and fund research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort.
Rettsyndrome.org will assist families of individuals living with Rett syndrome by providing them with connections to critical and useful information, programs, services, and support from diagnosis to day-to-day life.
ADVOCACY & AWARENESS
Rettsyndrome.org will advocate for and raise awareness about individuals with Rett syndrome so the scientific and medical community, policy makers, educators, care givers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals dealing with Rett syndrome on a daily basis.
Rettsyndrome.org is a 501c(3) non-profit corporation registered as The International Rett Syndrome Foundation and established in 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association.
- Jackie Piscatelli
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