• ORGANIZATION PROFILE
  • International Rett Syndrome Foundation International Rett Syndrome Foundation

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Mission Statement

To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.

Description

Our mission: To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity. RESEARCH

Rettsyndrome.org will coordinate, cultivate, accelerate, and fund research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort.

FAMILY EMPOWERMENT

Rettsyndrome.org will assist families of individuals living with Rett syndrome by providing them with connections to critical and useful information, programs, services, and support from diagnosis to day-to-day life.

ADVOCACY & AWARENESS

Rettsyndrome.org will advocate for and raise awareness about individuals with Rett syndrome so the scientific and medical community, policy makers, educators, care givers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals dealing with Rett syndrome on a daily basis.

About RettSyndrome.org

Rettsyndrome.org is a 501c(3) non-profit corporation registered as The International Rett Syndrome Foundation and established in 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association.

Website

http://www.rettsyndrome.org

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Reviews

Average Review 2 reviews

Would you recommend International Rett Syndrome Foundation?

by Vandana P. from Roselle, IL (2017-06-09 07:14:09.0)
Was never contacted back about this opportunity.
by Aljereau M. from San Tan Valley, AZ (2017-04-03 13:43:09.0)
Phoenix Color Run was fun. I had a great time.
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