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The mission of The Children's Tumor Foundation, is to: Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and, Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.
Neurofibromatosis is a genetic disorder that affects 1 in 4,000 babies born. It can be inherited or caused by a genetic mutation, so everyone is at risk. It affects all races and genders equally. It manifests in tumors that grow on the nervous system, as well as learning disabilities, low muscle tone, behavioral problems, among other things.
- Michelle Braden
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