Here's a sample of our volunteer opportunities:VIEW AS
There are more than 600,000 Americans and over 12 million people worldwide who are living with PKD. So we created Chapters in major cities across the country and beyond -- providing a forum for patients, family and friends to come together and learn more about PKD, share personal stories, and join in the fight to raise awareness and funds in the search for a cure.
Polycystic Kidney Disease is the most common genetic, life threatening disease affecting more than 600,000 Americans and an estimated 12.5 million people worldwide - regardless of sex, age, race or ethnic origin. In fact, PKD affects more people than cystic fibrosis, muscular dystrophy, hemophilia, Down syndrome and sickle cell anemia -- combined. Polycystic means multiple cysts. In effect, PKD denotes multiple cysts on each kidney. These cysts grow and multiply over time, also causing the mass of the kidney to increase. Ultimately, the diseased kidney shuts down causing end-stage renal disease for which dialysis and transplantation are the only forms of treatment. PKD comes in two forms. Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the most common, affecting 1-in-400 to 1-in-500 adults. Autosomal Recessive Polycystic Kidney Disease (ARPKD) is far less common, affecting 1-in-10,000 at a far younger age, including newborns, infants and children.
Do you work for this organization?
Request administrator status and update its information!