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The MDA National Task Force on Public Awareness is a voluntary advisory body of adults with neuromuscular diseases who are leaders in their communities. The task force was organized to promote the goals and programs of the Association, and to provide MDA with feedback relating to the needs of those it serves.
The Task Force's mission is to advise the Association on matters of importance to people with disabilities such as medical care, insurance, independent living, personal assistance services and pertinent legislation. It also fosters greater awareness of MDA's contributions to people with neuromuscular diseases, and the Association's central role in assisting those it serves to live rewarding, productive lives that are fully integrated into mainstream American society.
In the late 1940s, Paul Cohen, a prominent New York businessman who had muscular dystrophy, helped found the Muscular Dystrophy Association. Since MDA began, adults with neuromuscular diseases have been among its leaders as chapter officers, members of the Board of Directors and advisers. Under their guidance, MDA has educated the public about living with disabilities, and supported efforts to ensure people with disabilities enjoy equal rights and opportunities.In 1992, MDA established the National Task Force on Public Awareness, an advisory body composed of individuals from across the country who are leaders in their communities and achievers in professional fields. This nationwide group of volunteers -- all of whom are adults affected by neuromuscular diseases in MDA's program -- serve as consultants for the Association, particularly on issues of interest to people with disabilities.
As individuals, task force members represent MDA to the general public and the news media. Task force members also are highlighted in MDA educational materials, including video and print public service announcements
- Sandra Pearson
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