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Beyond Batten Disease Foundation was established to eradicate Batten disease. We seek to accomplish our mission in two ways:
- Raise awareness and money to accelerate research to find a cure for Batten disease. Learn more.
- Develop an easy and inexpensive blood test to detect the gene mutations for Batten disease, and hundreds of other rare conditions like it, that claim the lives of thousands of children each year. Learn more.
Batten disease is a fatal neurodegenerative disorder that takes away childhood, then takes away the child. But there is hope. Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.
Research for Batten disease is currently ongoing at prominent institutions in the U.S. and abroad, yet it is severely underfunded. Beyond Batten Disease Foundation is working to raise money and to build a collaborative network of researchers to accelerate the development of treatments, and one day, find a cure for Batten disease.
- Rachel Armbruster
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