• ORGANIZATION PROFILE
  • Beyond Batten Disease Foundation Beyond Batten Disease Foundation

Causes

  • Interest area icon
  • Interest area icon

Volunteer with us!

VIEW AS
Subscribe Get an RSS feed of these Opportunities
Please wait . . .

Mission Statement

Beyond Batten Disease Foundation was established to eradicate Batten disease. We seek to accomplish our mission in two ways:

    1. Raise awareness and money to accelerate research to find a cure for Batten disease. Learn more.
    2. Develop an easy and inexpensive blood test to detect the gene mutations for Batten disease, and hundreds of other rare conditions like it, that claim the lives of thousands of children each year. Learn more.

Description

Batten disease is a fatal neurodegenerative disorder that takes away childhood, then takes away the child. But there is hope. Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

Research for Batten disease is currently ongoing at prominent institutions in the U.S. and abroad, yet it is severely underfunded. Beyond Batten Disease Foundation is working to raise money and to build a collaborative network of researchers to accelerate the development of treatments, and one day, find a cure for Batten disease.

Website

http://www.beyondbatten.org

Contact

Report this organization

Reviews

BE THE FIRST TO RECOMMEND THIS ORGANIZATION!
Would you recommend Beyond Batten Disease Foundation?

Engage your employees, consumers, or students! VolunteerMatch provides the tools that make community involvement easy.