During these uncertain times, how can we help?

As the world leader in volunteerism we feel a responsibility to unite our broader community, and to use this moment to become stronger.

See below to participate in our Impact Sector survey, access our COVID-19 Resource Hub, and explore our growing directory of COVID-19-specific and virtual volunteering opportunities.
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  • Marfan Foundation Marfan Foundation


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Mission Statement

The Marfan Foundation is a nonprofit that fights for victory over Marfan syndrome and related disorders. Marfan syndrome is a life-threatening genetic disorder that most seriously affects the heart, blood vessels, and eyes so we do everything possible, including research, advocacy, and education, to make sure people can live longer, fuller lives.


The Marfan Foundation is the primary source of accurate and up-to-date information on Marfan syndrome and related disorders. It was founded in 1981 by a handful of individuals seeking help to understand the complex condition affecting themselves and their loved ones.

The Foundation has grown and significantly increased its education, support and research programs. Professional staff oversee the Information Resource Center, which provides personalized service through a toll-free information line (800-8-MARFAN) and the website (www.marfan.org), medical professional and patient education and public awareness programs, advocacy, and the research grant and fellowship grant programs.

The heart and soul of the Marfan Foundation is our Volunteer Network, comprised of Chapters, Local Groups, Support Groups and individual volunteers that allows the Foundation to extend its reach into local communities across the country.


Would you recommend Marfan Foundation?