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Huntington's Disease Society of America, National Headquarters

Cause Area

  • Children & Youth
  • Community
  • Health & Medicine
  • People with Disabilities
  • Sports & Recreation

Location

505 Eighth AvenueSuite 902New York, NY 10018 United States

Organization Information

Mission Statement

The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families.

To promote and support research and medical efforts to eradicate Huntington's Disease.

To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.

To educate the public and health professionals about Huntington's disease.

Description

Huntington's Disease (HD) is an inherited, progressively degenerative brain disorder that results in a loss of both mental faculties and physical control. Symptoms usually appear in an individual between 30-50 years of age and progress over a 10-25 year period. HD affects the individuals ability to think, speak and walk. Ultimately, the weakened individual succumbs to pneumonia, heart failure or other complications. Presently, there is no effective treatment or cure. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

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