• ORGANIZATION PROFILE
  • Osteogenesis Imperfecta Foundation Osteogenesis Imperfecta Foundation

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(39.141144,-77.21614)
 

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Mission Statement

The Osteogenesis Imperfecta Foundation's (OIF) mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support.

Description

Osteogenesis Imperfecta (OI) causes brittle bones that break easily. A cough or sneeze can break a rib and rolling over can break a leg. OI affects approximately 50,000 people in the United States and is a permanent genetic disorder that causes fragile bones throughout a person’s lifetime.

The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. Each year, the Foundation serves thousands of people and provides almost $1 million in funding to deserving programs and scientists. In addition to research, the OI Foundation's National Information Center meets the need for information about OI through free and low-cost resources on its web site, as well as individual responses to thousands of inquiries each year.

Website

http://www.oif.org

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