• ORGANIZATION PROFILE
  • Families of SMA - Greater FL Chapter Families of SMA - Greater FL Chapter

Causes

  • Interest area icon
  • Interest area icon
  • Interest area icon

Volunteer with us!

VIEW AS
Subscribe Get an RSS feed of these Opportunities
Please wait . . .

Mission Statement

Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:
- Funding and advancing a comprehensive research program;
- Supporting SMA families through networking, information and services;
- Improving care for all SMA patients;
- Educating health professionals and the public about SMA;
- Enlisting government support for SMA;
- Embracing all touched by SMA in a caring community.
Our vision is a world where Spinal Muscular Atrophy is treatable and curable.

Description

In 1984, a small group of parents across the country banded together to support, comfort and educate each other about the devastating disease affecting their children; Spinal Muscular Atrophy. Their purpose was twofold--to support families affected by SMA and to fund research leading to a treatment and eventually, a cure. Families of SMA has grown from this courageous group of families to an international network of fundraising and support including 30 volunteer Chapters throughout the United States.

Since 1984, our legacy is one of unparalleled research progress and patient support, from grassroots fundraising to global scientific leadership. Families of SMA has funded over $50 million of SMA research in three areas: Basic Research, Drug Development and Clinical Trials.

Website

http://www.fsma.org/Fundraising/EventsCalendar/index.cfm?ID=6161&blnShowBack=False&idContentType=115

Contact

Reviews

BE THE FIRST TO RECOMMEND THIS ORGANIZATION!
Would you recommend Families of SMA - Greater FL Chapter?

Engage your employees, consumers, or students! VolunteerMatch provides the tools that make community involvement easy.