The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters -- patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
I signed up to volunteer for the CF Cycle for Life race on August 16, 2015. However, no one even showed up to the event. The coordinator told me to show up at 6:30 am. I showed up on time and eventually left after an hour and a half of waiting along with another volunteer who was frustrated that the organizers did not come. There was no sign telling us what to do or even any sign at all that made it look like there was supposed to be a race. Overall, this was a huge disappointment and waste of time.