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Spina Bifida Association

Cause Area

  • Advocacy & Human Rights
  • Children & Youth
  • Health & Medicine
  • People with Disabilities
  • Women

Location

1600 Wilson blvdsuite 800Arlington, VA 22209 United States

Organization Information

Mission Statement

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.

Description

Spina Bifida is the most common permanently disabling birth defect that is associated with life. Approximately 166,000 individuals in the United States have Spina Bifida.

It’s a type of neural tube defect (NTD) that occurs when a baby’s neural tube fails to develop or close properly - the literal meaning for Spina Bifida is "split spine." Typically occurring within the first 28 days of pregnancy while the neural tube is forming, Spina Bifida often occurs before a woman knows she is pregnant.

Commonly referred to as the "snowflake condition" of birth defects because no two cases are the same, Spina Bifida can range from mild to severe. The severity depends on everything from the size of the opening to the location on the spine.

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