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Promote the prevention of Spina Bifida and enhance the lives of all affected.
There are 65 million women of childbearing age who are at risk of having a child affected by Spina Bifida.
There are 70,000 people affected by Spina Bifida in the United States and 250,000 family members who care about them.
Everyday, one in eight babies born in the United States is affected by Spina Bifida.
Spina Bifida is a neural tube defect that occurs in the first month of life challenging the baby, the child and the adult with this birth defect with significant complications including hydrocephalus(excess fluid on the brain), paralysis, urologic impairments and developmental issues.
If a woman of childbearing age simply takes a multivitamin containing folic acid, she reduces the likelihood of having a baby affected by Spina Bifida by 70%.
The Spina Bifida Association carries out its life saving and life altering work through research, education and advocacy. Through our activities we bring information and hope to families newly diagnosed; we offer young people programs to help them grow; and for adults we provide lifesaving treatment information to help them live well. For women, we offer lifesaving information and programs throughout the US through Spina Bifida Association chapters
- Cindy Brownstein
- (202) 944 3285
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