• ORGANIZATION PROFILE
  • National Fragile X Foundation National Fragile X Foundation

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(37.89933,-122.06258)
 

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Mission Statement

The National Fragile X Foundation unites the Fragile X community to Enrich lives through educational and emotional support, Promote public and professional awareness, and Advance research toward improved treatments and a cure for Fragile X.

Description

The NFXF is often the "first stop" after the initial diagnosis of a Fragile X disorder is received by an individual or family. We provide free information by mail and on our extensive website and support over the phone and email. We refer families to FX Clinics around the country for evalutiona and treatment services and maintain an extensive network of parent-led volunteer groups. We also host an bi-annual education conference that attracts attendees from around the world. Each year we organize and train volunteer advocates to visit with their Congressional representatitves in Washington DC to ask for continued financial support for FX research from the federal government.

Website

http://www.fragilex.org

Contact

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