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The Sickle Cell Association of Kentuckiana, Inc. (SCAK) is a tax-exempt not-for-profit organization that provides education, support, and advocacy for individuals with sickle cell disease and their families. SCAKis dedicated to increasing awareness of this disease and supporting endeavors that assure prompt and appropriate medical care. Our target audience, however, is not limited to those personally affected by sickle cell. Our mission encompasses educating the lay community as well as the medical community about the disease and resources available.
The purpose of the Sickle Cell Association of Kentuckiana is to provide Sickle Cell Disease information, education, and client services within the State of Kentucky and southern Indiana. To develop and promote favorable resolutions of issues that impact individuals with Sickle Cell conditions as well as maximizing the potential for public support of the organization.
The Sickle Cell Association offers patient advocacy, monthly and bi-monthly family events, support group meetings, educational opportunities through health fairs and trainings, and the following through our "Conquering Sickle Cell Anemia" program:
Sickle Cell Registry (KY and Southern IN)- A database to register and track Sickle Cell patients in Kentucky and southern Indiana who frequent the Sickle Cell Associations programs and services. Currently there is not a Census track on patients living with Sickle Cell Anemia.
Education & Awareness- SCAK will rigorously promote Sickle Cell related issues to the community, families, and Sickle Cell children. We will utilize updated educational materials, pamphlets, books, SCAK materials for health fairs and awareness initiatives.
Testing- In conjunction with the American Red Cross, testing initiatives will allow members of the community to be tested for the sickle cell trait and disease in KY and southern Indiana at no cost.Innovative Support Groups- The 3 support groups (SCA Children, SCA Young Adults, and Parents) focus on correcting stigmas one may have about their journey with Sickle Cell Disease. Throughout the support group meetings participants will receive a renewed strength of hope, support, and encouragement that will help eliminate some fears, stress, anxiety, and depression issues commonly associated with SCA.
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