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  • Sarcoma Foundation of America North Carolina Chapter Sarcoma Foundation of America North Carolina Chapter

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Mission Statement

The mission of the Sarcoma Foundation of America (SFA) is to advocate for increased research to find new and better therapies with which to treat patients with Sarcoma. The organization raises money to privately fund grants for Sarcoma researchers and conducts education and advocacy efforts on behalf of Sarcoma patients.

Description

Our Goals Eliminate pain and suffering due to sarcoma by:

Funding translational research grants that will lead to new Sarcoma therapies
Advocating for increased government funding against Sarcoma
• Creating alliances with the biotechnology and pharmaceutical industries to rapidly
develop new and better Sarcoma treatments
Increasing public awareness regarding early detection of Sarcoma
Educating sarcoma patients regarding access to optimal Sarcoma care
Advocating for early access by Sarcoma patients to promising agents developed for other cancer types

History

The Sarcoma Foundation of America (SFA) was founded by Dr. Mark Thornton, Mrs. Patricia Thornton, and Dr. John Brooks (pictured above left), and incorporated in Maryland in 2000. The SFA received 501(c)(3) designation from the United States Internal Revenue Service on June 18, 2001. This designation allows all contributions to SFA to be tax deductible.

On July 4, 2001 there was a "Call for Founders." The period from July 4, 2001 until July 3, 2002 was the Founding Period for the Foundation, and members joining during this period were considered Founding Members. Current active Founding Members of the SFA are Gary and Addie Tomei (pictured above right) of New York City. In 2003, the Tomei’s also began the tradition of the Annual SFA Gala, which is the SFA’s largest yearly fundraiser.

Since these humble origins, the SFA has attracted thousands of members in all 50 states. With your dedicated support the SFA has supported 40 sarcoma research grants since 2003, along with two large American Society of Clinical Oncology (ASCO) Foundation Clinical Research grants worth $450,000. The SFA has also funded three ASCO Young Investigator Awards and has started a large research based initiative called the Sarcoma Patient Registry, designed to increase research performed on sarcoma and to facilitate clinical trials.

Please join us by becoming a Member. Membership is free. Register online or write to: Sarcoma Foundation of America, 9884 Main Street, Damascus, Maryland 20872.

SFA is a national organization with state chapters. Learn how you can get involved in your local state chapter. Because the primary purpose of the SFA is to increase the focus and attention on sarcoma research, there is an emphasis on fundraising for research grants and advocacy activities. However, state chapters also serve to support the sarcoma community through communications and activities for sarcoma patients and their families.

SFA is managed by a Board of Directors who are elected for a two-year term. Additional Board members can be added at any time following a nomination and a vote from the membership. SFA is also advised by a stellar group of medical professionals who serve on our Medical Advisory Board. The Medical Advisory Board reviews and approves all recipients of SFA research grants.

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