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Our mission is to found and support research to cure Canavan Disease and other genetic brain diseases.
The Canavan Research Foundation is a 501c3 non-profit dedicated to funding research and curing genetic brain diseases. We spearheaded the world's first trial of gene therapy in the brain in 1996 and demonstrated the first ever regrowth of myelin in a deteriorating disease. We have been on "Sixty Minutes" and the "CBS Morning Show," have been featured in The New York Times and TIME Magazine, and have published research results in numerous scientific journals. We are searching for a cure, and we will not stop until we find one.
Our latest research focuses on stem cells, and scientists are finalizing a trial to administer stem cells to try and cure Canavan. Stem cell research has huge implications for many degenerative diseases, including Parkinson's and Alzheimer's.
- Samantha Karlin
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