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The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
- clogs the lungs and leads to life-threatening lung infections; and
- obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Until we conquer this disease, our team will work tirelessly to extend and enhance life for those with cystic fibrosis by functioning as:
- Scientific pioneers, blazing new trails in CF research;
Fund-raisers, securing the money needed to support our efforts;
Advocates, keeping CF a top priority in government, industry and research;
Investors, funding drug discovery and development;
Caregivers, linking patients and families to specialized CF care; and
Family, offering support, information and resources.
- Vicki Hendley
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