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To support medical research to discover the cause, treatment and cure for Hutchinson-Gilford Progeria Syndrome ( Progeria ), a premature aging syndrome that afflicts children, and to raise awareness about Progeria by educating the families, the public and health professionals.
Founded in 1999 by the family of a child with progeria. 13-member volunteer board of directors, full-time executive director and development director. Several volunteer committees.