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To provide services and support for families affected by HD and to assist in raising funds for research for a cure.
HDSA currently supports more than 40 scientists and 16 major HD laboratories in North America and around the world through our HDSA Coalition for the Cure with annual grants which range from $40,000 to $100,000 for HD investigations. Twenty-one HDSA Centers of Excellence at locations in major hospitals and university medical centers are supported by HDSA across the continental United States. The national office also produces and distributes, free of charge, publications and informational materials on HD and maintains a toll-free information hotline to assist physicians, patients and family members. Through 12 HDSA regions, 38 volunteer-based chapters and affiliates, 200+ support groups, we reach out across the nation to offer HD patients and their families guidance, encouragement, resource information and leadership opportunities at HDSA events, meetings and seminars -- truly a place to care, share while we all work toward a cure. We also work towards change through our HDSA advocacy programs.
HDSA is a 501(c)3 not-for-profit organization recognized as a charity in good standing by the IRS(EIN: 133349872) and meets all the required high Standards of Excellence of the BBB Wise Giving Alliance, Community Health Charities, National Health Council and is proud to have an A rating from the American Institute of Philanthropy.
Visit our Living with HD Section for more information on HD resources.
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