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Neurofibromatosis Midwest

Cause Area

  • Children & Youth
  • Community
  • Education & Literacy
  • Health & Medicine


473 Dunham Rd., Ste. 3St. Charles, IL 60174 United States

Organization Information

Mission Statement

To support those affected by
Neurofibromatosis, to create awareness and to find a treatment and the
cure for Neurofibromatosis


We offer many avenues of support and education for NF affected families and individuals. This includes phone support for such things as clinic information or for an understanding ear. We also hold various
events for NF affected individuals or their loved ones to meet and share experiences and to learn more about NF and NF research. This includes our annual symposium held every October, an "Ask the Doctors" opportunity in April, Great Steps Walks in the summer and more. We also have a Parent's Action Committee, a NF Action Group that addresses adult issues and an NF-2 Action Group.


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