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The Ella Grace Chiari Foundation, Inc. aims to raise awareness of Chiari Malformation. Our goals are to provide informational resources to families through awareness events, conferences and web site interactions, as well as offer travel grants to families who show financial need and must travel outside their insurance coverage area for medical treatment. We aim to network families to the appropriate medical professionals for evaluation and or treatment, and to fund physician education and research advancements.
EGCF was founded in Nassau, NY and has recently formed a Chicago land, IL Chapter. Both regions are always looking for additional volunteer support to help us reach our goals. In both the Spring and Summer 2010, EGCF and EGCF Chicago will be hosting 5K Run/1 mi Fun Run events in their local communities. EGCF also hopes to build awareness of Chiari Malformation in Chicago land by engaging a variety of media partners and using creative marketing. Another key area of development is gaining additional corporate sponsorhsips and building alliances with the medical community and local public figures who can support our cause.
- Carmela Richeson
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