• ORGANIZATION PROFILE
  • Dravet Syndrome Foundation Dravet Syndrome Foundation

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(39.902195,-74.99686)
 

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Mission Statement

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.

Description

The Dravet Syndrome Foundation is a nonprofit corporation organized and operated exclusively for charitable purposes. Specifically, our organization will raise money to support research in Dravet syndrome and related epilepsies, as well as offer advocacy and financial support to patients and their families for necessary expenses associated with this condition that are not covered through private insurance or other available assistance programs. Our organization has focuses on research and patient assistance through a variety of programs, including, but not limited to:

Our Research Grant and Postdoctoral Fellowship program sponsors research directly related to Dravet syndrome and associated epilepsies. Since 2009, we have awarded over $3.6M in research grant awards.

Our Patient Assistance program offers grants to families of patients with Dravet syndrome and associated conditions for necessary medical expenses associated with this condition that are not covered through private insurance or other assistance programs. Since the inception of this program, we have awarded over $140K.

Our 3- day Biennial Family and Professional Conference that is designed to unite all groups committed to improving the lives of those with Dravet syndrome - including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. It allows an opportunity to foster new relationships and collaborations, both for families and professionals. It is held on even-numbered years at various locations across the U.S.

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