• ORGANIZATION PROFILE
  • Dravet Syndrome Foundation Dravet Syndrome Foundation

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(41.2705,-72.9655)
 

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Mission Statement

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.

Description

The Dravet Syndrome Foundation is a nonprofit corporation organized and operated exclusively for charitable purposes. Specifically, our organization will raise money to support research in Dravet syndrome and related conditions, as well as offer financial support to families of Dravet syndrome patients for necessary expenses associated with this condition that are not covered through private insurance or other available assistance programs. Our organization has designed and developed two programs in furtherance of our purposes.

The first being our Research Grant program to sponsor research directly related to Dravet syndrome and associated disorders. The second is our Patient Assistance program which offer grants to families of patients with Dravet syndrome and associated conditions for necessary medical expenses associated with this condition that are not covered through private insurance or other assistance programs.

Website

http://www.dravetfoundation.org

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