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The Purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it and to provide a forum for CF adults to communicate to each other.
We receive calls from people who want to know more about the United States Adult Cystic Fibrosis Association, Inc (USACFA). They think we are a large organization with a paid staff. We aren't!
Incorporated in 1990, USACFA is an independent 501 (c) (3) non-profit, tax-exempt organization which is operated entirely by adult volunteers who have cystic fibrosis (CF). USACFA is not affiliated with other CF organizations.
USACFA produces a newsletter run by adults who have CF. It is published quarterly and given free to anyone who cannot afford it. The articles are focus driven on topics that interest the CF community and their physicians, nurses, families and friends. It is also a forum for people to connect and discuss issues related to having CF and secondary illnesses related to CF, like diabetes, lung transplant, enzyme insufficiency, marriage/dating, life expectancy, etc.
- Andrea Eisenman
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