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THE CYSTIC FIBROSIS FOUNDATION WAS ESTABLISHED IN 1955 TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE
Cystic Fibrosis is a life-threatening genetic disease that affects the lungs and digestive systems of approximately 30,000 children and adults in the United States. Tremendous progress has been made, thanks to a focus on pioneering cystic fibrosis research and care. To continue to combat this orphan - or rare-disease we need to expand support and ensure critical research continues.
The Cystic Fibrosis Foundation is the world's leader in the search for a cure. Through our efforts, the life expectancy of a child with CF has doubled in the last 30 years. Still, too many lives are cut short by this devastating disease.
The Long Island Office of the Greater New York Chapter partners with individuals and organizations that share our vision of a world without CF. Together, we raise awareness and funds by hosting events throughout Nassau and Suffolk County.
- stefanie taylor
- (516) 827-1290
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