Project A.L.S.

Cause Area

  • Community
  • Health & Medicine
  • Sports & Recreation

Location

900 Broadway Suite 901New York, NY 10003 United States

Organization Information

Mission Statement

Jenifer Estess, her family, and friends, started Project A.L.S. in 1998, when Jenifer was diagnosed with the fatal brain disease, amyotrophic lateral sclerosis (known as Lou Gehrig's disease) at the age of thirty-five. Upon discovering that there were no effective treatments, Project A.L.S. set out to put medicine into place.

The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project A.L.S. has raised over $37 million, directing 81% to research programs. The majority of fundraising proceeds goes to support investigations in Genetics, Drug Discovery, Stem Cells, and Disease Pathways.

The hallmark of Project A.L.S. research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.

Description

Project A.L.S. is a non-profit organization raising money for research for ALS. In just over ten years the organization has raised nearly $50 million for research and has funded and developed the most comprehensive cross-disciplinary research collaborations in history. In December, Project A.L.S. research (turning skin cells into stem cells) was named the "Medical Breakthrough of 2008" by Time magazine. And just this week, our research was featured on CBS Evening News as a spectacular scientific breakthrough which, for the first time, is giving real hope to ALS patients.

Reviews

Would you recommend Project A.L.S.?
3 reviews Write a review
by Katherine B. (2024-03-18 21:54:47.0)
ALS is a cruel disease. My mum is 83 and had great difficulty speaking and swallowing much of anything. Food was getting trapped in her throat and blocking her air way was happening more often. she battled for each breath. The riluzole did very little to help her. The medical team did even less. Her decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of our primary physician, there she would have died. There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased her anxiety a bit. this year our primary physician started her on Natural Herbs Centre ALS/MND Ayurvedic treatment, 6 months into treatment she improved dramatically. It has been a complete turnaround with her speech, she no longer needs the feeding tube to feed, the treatment is a miracle. She recovered significantly! Visit Naturalherbscentre. com
by Bonnie L. (2021-09-24 18:52:29.0)
My first symptoms of ALS occurred in 2011, couldn't walk without a walker or a power chair, i had difficulty swallowing. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Kycuyu Health Clinic, It has made a tremendous difference for me (Visit ww w. Kycuyuhealthclinic .c om). I had improved walking balance, increased appetite, muscle strength, just amazing how effective this treatment helped me
by Alexandrea E. from Atlanta, GA (2009-08-21 21:58:39.0)
The money is greatly needed for research towards a cure for a disease that many know nothing about. I had a wonderful time and know that my few hours of helping this organization contributed towards a cure was amazing. The founders behind Project A.L.S. are beyond grateful and do not take your time for granted. They are a small organization on a big mission, and you leave knowing that your efforts were not taken for granted. Find any opportunity to be a part of this organization. You will not regret it!

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