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Jenifer Estess, her family, and friends, started Project A.L.S. in 1998, when Jenifer was diagnosed with the fatal brain disease, amyotrophic lateral sclerosis (known as Lou Gehrig's disease) at the age of thirty-five. Upon discovering that there were no effective treatments, Project A.L.S. set out to put medicine into place.
The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project A.L.S. has raised over $37 million, directing 81% to research programs. The majority of fundraising proceeds goes to support investigations in Genetics, Drug Discovery, Stem Cells, and Disease Pathways.
The hallmark of Project A.L.S. research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.
Project A.L.S. is a non-profit organization raising money for research for ALS. In just over ten years the organization has raised nearly $50 million for research and has funded and developed the most comprehensive cross-disciplinary research collaborations in history. In December, Project A.L.S. research (turning skin cells into stem cells) was named the "Medical Breakthrough of 2008" by Time magazine. And just this week, our research was featured on CBS Evening News as a spectacular scientific breakthrough which, for the first time, is giving real hope to ALS patients.
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