Voices of Winged Warriors

Cause Area

  • Advocacy & Human Rights
  • Health & Medicine

Location

P.O. Box 760142Lathrup Village, MI 48076 United States

Organization Information

Mission Statement

Voices of Winged Warriors (VoWW) unites the advocacy of caregivers and allies who have lost loved ones to sickle cell disease. VoWW aims to radically improve emergency care, mitigate ongoing SCD complications through better healthcare access and maintenance treatment, educate medical associations, shift policy and legislation through advocacy, and create and impact other changes that transform the landscape of living with sickle cell. We vow to help individuals with sickle cell live life to the fullest.

Description

VoWW is committed to creating change through our critical Points of Action: Emergency Care; Knowledge, Equity, & Accountability; Advocacy; Education & Economic Empowerment; and Healing & Support (stands alone and weaves through each pillar).

Our primary focus is currently on emergency care through the Sickle Cell STAT emergency department initiative. STAT supports the work of the American College of Emergency Physicians (ACEP) and the American Society of Hematology (ASH) to help save lives. Through STAT, we also use online surveys to gather patient feedback on emergency treatment and maintenance care. www.sicklecellstat.org

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