The Ehlers-Danlos Society

Cause Area

  • Advocacy & Human Rights
  • Health & Medicine
  • People with Disabilities


447 Broadway2nd FL #670New York, NY 10013 United States

Organization Information

Mission Statement

The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.


Many around the world face a diagnostic odyssey: years, sometimes lifetimes, fighting for recognition, diagnosis, and care. The Ehlers-Danlos Society is working towards a time when geography and wealth no longer determine your quality of life.

At The Ehlers-Danlos Society, we CARE - We are driving forward Care, Access, Research, and Education, and are committed to changing the lives of people impacted by EDS and HSD .


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