THE ASSOC OF HIDRADENITIS SUPPURATIVA AND INFLAMMATORY DISEA
Cause Area
- Arts & Culture
- Community
- Education & Literacy
- Health & Medicine
- Media & Broadcasting
Location
220 W. Congress StreetFloor 2 #1030Detroit, MI, MI 48226 United StatesWebsite:
https://www.theahsid.org/
Organization Information
Mission Statement
The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID) is a national patient advocacy organization creating opportunities for education, community building, diversity, equity, and inclusion for the hidradenitis suppurativa (hs) and inflammatory disease communities and their caregivers. Our mission is to empower people living with hs with the knowledge and resources to understand their disease, take actionable steps to receive treatment, and change their relationship with shame and their personal journey.
Description
AHSID is entering the fifth year of producing our patient-led educational virtual and in-person summit, which has amassed 1,900+ registrations , 1.2K+ views on YouTube , and over $40,000+ in donations and corporate sponsorships . The HS Awareness Week Summit focuses on educating people living with hidradenitis suppurativa, their caregivers, and stakeholders through daily sessions on topics including but not limited to disease treatment, wound care, alternative medicines, surgical options, mental health barriers, and more. As an extension of this ongoing work, an annually updated HS Basics Booklet was created to further our impact beyond the summit. This booklet has been downloaded 250 times this year alone . In 2019, AHSID produced a documentary on HS called My Gold Lining: A Documentary on Hidradenitis Suppurativa to elevate the stories of Black women with HS to help raise awareness for marginalized communities and inform the industries treating them.
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