Save Sight Now

Mission Statement

Usher syndrome type1 is a genetic disorder that robs children of their hearing and balance from birth and rapidly deteriorates their vision. Usher syndrome is the most common form of deaf blindness. Imagine navigating the world without sound, balance and vision. We’re focused on finding a treatment or cure for Retinitis Pigmentosa - the cause of blindness related to Usher syndrome. Our goal is to ensure those living with Usher syndrome type 1B - an underserved community - do not lose another critical sense for experiencing and navigating the world around them. We know this is achievable because we’ve already seen successful treatments approved by the FDA for other forms of retinal diseases; and we’ve made it our goal to ensure researchers are prioritizing treatments for those that have already lost so much by funding their efforts.