ADRENAL INSUFFICIENCY UNITED

Cause Area

  • Health & Medicine
  • People with Disabilities

Location

20100 COQUILLE DROREGON CITY, OR 97045 United States

Organization Information

Mission Statement

Adrenal Insufficiency United is committed to enhancing the lives and health of our friends and family who suffer from Adrenal Insufficiency. We will do this by supporting each other, raising awareness, working together with doctor's to individualize care, collaborating with organizations working with AI individuals, and raising funding for desperately needed research. We will strive to have better understandings of the medicines used to treat adrenal insufficiency and how they will best serve each individual. We will challenge doctors to link us with other hormonal diseases (like diabetes) so that we all may benefit from the technology, research, funding, and understanding behind them. We expect and demand fair treatment in the health care industry, government, and schools and will fight for our loved ones until they get it. We will stand strong in our beliefs and be our own advocates; to learn, read and educate ourselves so that we are no longer Sheep but Shepherds.

Description

Started in 2015 by two moms of children with this rare disease looking for a place to connect with others, educate and advocate for change. Our third patient conference will be in Portland Oregon March 30 - April 1, 2023.

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