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SICKLE CELL-THALASSEMIA PATIENTS NETWORKS INC

Cause Area

  • Advocacy & Human Rights
  • Community
  • Crisis Support
  • Education & Literacy
  • People with Disabilities

Location

1139 SAINT JOHNS PLBROOKLYN, NY 11213 United States
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Organization Information

Mission Statement

SCTPN is dedicated to improving the quality of life for individuals and families living with sickle cell disease, thalassemia and other inherited blood disorders through education, advocacy and support interactions. SCTPN seeks to diminish the negative social, psychological, and economic impact these debilitative disorders have on our community.

Description

  • To collaborate with other community organizations, healthcare providers as well as public and government agencies to increase public awareness of inherited blood disorders.
  • To advocate for increased funding to establish more comprehensive treatment programs throughout New York State, support additional research to find more effective medicinal therapies and treatment to manage the chronic symptoms of SCD and related complications.
  • To support research to find a viable cure for all people living with hemoglobin disorders.
  • To build a strong coalition of organizations, agencies and other stakeholders that will allow for the expansion of our collective missions and visions.

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