Theos Village The TBCK Foundation

Cause Area

  • Advocacy & Human Rights
  • Children & Youth
  • Community
  • Health & Medicine
  • People with Disabilities


2801 Wildwood LaneStevensville, MI 49127 United States

Organization Information

Mission Statement

The TBCK Foundation is dedicated to the families impacted by TBCK Syndrome through advancing research, advocacy and education, and supporting families.


The TBCK Foundation is a rare disease organization that is working to improve lives impacted by rare disease. We are always hard at work to help raise funding for rare disease research, to help provide families with resources, and to continually work to advocate and educate around issues of disability and neurodiversity!


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