DYSAUTONOMIA SUPPORT NETWORK
Cause Area
- Community
- Health & Medicine
- People with Disabilities
Location
140 PITMAN ST APT 106PROVIDENCE, RI 02906 United StatesWebsite:
https://www.dysautonomiasupport.org/
Organization Information
Mission Statement
Dysautonomia Support Network’s Mission is to provide a Community that Empowers and Supports those impacted by dysautonomia to live their best lives.
Description
Being diagnosed and living with dysautonomia can be a life-altering event. Individuals living with dysautonomia - and their loved ones - often require a variety of resources and support. DSN is a group of committed volunteers who are passionate about serving people with dysautonomia because we have been impacted by dysautonomia - as patients, family members, friends, or health care providers.
DSN was founded by an individual who is a dysautonomia patient, caregiver, and medical professional. Seeking information and community with others who have a shared experience, she organized an initial meeting with a small group of individuals living with dysautonomia. What began as an informal meeting in a coffee shop has grown into a thriving 20,000-member-strong non-profit organization focused on bringing support, community, and hope to people around the world who are impacted by dysautonomia.
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