CEREBRAL PALSY POSITIVE

Cause Area

  • Advocacy & Human Rights
  • Health & Medicine
  • People with Disabilities

Location

65 GLEN RD UNIT 584GARNER, NC 27529 United States
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Organization Information

Mission Statement

Cerebral Palsy Positive's mission is to encourage, educate and empower people with cerebral palsy by helping to narrow the unjust healthcare gap between pediatrics and adulthood. In the U.S., adults living with cerebral palsy outnumber children, but adult healthcare is severely lacking. As a result, the majority of the more than 1M people with CP in the U.S. are being robbed of a productive life because they cannot find or get to local practitioners who treat adults. Through a network of funding providers, we work to supplement medical transportation costs or cover telehealth copays for adults challenged with CP to access treatment at a Cerebral Palsy Research Network (CPRN) lifespan center.

Description

Cerebral Palsy Positive was originally launched as an informational site out of frustration at the lack of medical knowledge beyond pediatrics. When things began changing over a decade ago, I wanted/needed answers! Although information was scarce, I persevered, posting anything that would encourage or educate people challenged with CP. With the majority of human life being BEYOND the pediatric realm, it’s illogical that, until recently, studies concluded with "more research needs to be done" in regard to the adult population.

Cerebral Palsy is the world's most common childhood-onset physical disability. With it being a lifelong disorder with no cure, the adult population will continue to increase. Per the Cerebral Palsy Alliance Research Foundation, 1 in 323 babies are diagnosed with cerebral palsy in the US and every hour a baby is born with cerebral palsy in the US.

Cerebral Palsy Positive is a unique 100% virtual organization whose goal is to help narrow this gap by lessening the financial burden of having to travel to one of the less than 25 clinics within the US that treats adults. Clients are partially reimbursed for transportation to a center or receive full reimbursement for a telehealth copay. With the proper continuity in healthcare, persons with CP can live fulfilling, productive lives.

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