Sickle Cell Medical Advocacy Inc.

Cause Area

  • Advocacy & Human Rights
  • Crisis Support
  • Health & Medicine
  • People with Disabilities
  • Race & Ethnicity


1317 Edgewater Dr. Suite 5035, Orlando FL32804Orlando, FL 32804 United States

Organization Information

Mission Statement

Sickle Cell Medical Advocacy Inc. navigates transformative healthcare for sickle cell patients following national guidelines for urgent medical intervention, promoting faster healing and shorter hospitalizations.


Sickle Cell Medical Advocacy Inc. Is a national nonprofit primarily supporting the sickle cell disease (SCD) community through virtual educational resources and online support groups. Our two main programs are:1) SCD Healthcare Navigation Certification is an online program where we rigorously train motivated volunteers to become certified SCD Navigators. Following our intensive training based on NIH and ASH guidelines and expert SCD management practices, these students become HIPAA-certified and adept in virtual communication with ER/hospital providers.2) Health Navigation Assistance - SCD Navigators assist patients during pain crises, acting as an informed resource between patients and healthcare professionals. Our healthcare navigators support sickle cell patients who register with SCMA continuously. We ensure every SCD patient can access a skilled healthcare navigator during emergency visits, enhancing their care and treatment outcomes.


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