Volunteer to support Hurricane Ian disaster relief efforts.

Read More

PRIMARY ALDOSTERONISM FOUNDATION

Cause Area

  • Health & Medicine

Location

3533 E Ahwatukee CTPhoenix, AZ 85044 United States

Organization Information

Mission Statement

The Primary Aldosteronism Foundation is committed to creating the paradigm shift that will lead to the highest standard of care for all affected patients by promoting timely and accurate diagnosis and treatment, fostering targeted research and innovation, and facilitating patient collaboration worldwide.

Description

We are a patient initiative serving the primary aldosteronism community worldwide and are headquartered in the US state of Arizona. Like most patients with PA, our Co-Founders were diagnosed many years after developing the disease, and encountered a great deal of difficulties on the road to treatment. With input from other patients worldwide, they realized that primary aldosteronism was not the rare disease they were told they had, and that instead, primary aldosteronism was "under-diagnosed" and "under-treated" which, in turn, was limiting the chances to see research bring better understanding of and more effective ways to treat the disease. The Primary Aldosteronism Foundation was created to help address these issues with an inclusive model involving researchers, clinicians and patients.

Reviews

Would you recommend PRIMARY ALDOSTERONISM FOUNDATION?
0 reviews Write a review

Report this organization