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PRIMARY ALDOSTERONISM FOUNDATION

Cause Area

  • Advocacy & Human Rights
  • Board Development
  • Community
  • Crisis Support
  • Health & Medicine

Location

1610 PUEBLA DRGLENDALE, CA 91207 United States

Organization Information

Mission Statement

The Primary Aldosteronism Foundation is committed to creating the paradigm shift that will lead to optimum diagnosis and treatment of the disease by raising awareness, fostering research, and providing support to patients and healthcare professionals worldwide. In its advocacy role, the Foundation’s objective is to be a voice for patients, and raise awareness: At all levels of healthcare so that primary aldosteronism is no longer considered a rare disease but the major public health issue that it actually is.

Description

We are a patient initiative serving the primary aldosteronism community worldwide and are headquartered in the US state of Arizona. Like most patients with PA, our Co-Founders were diagnosed many years after developing the disease, and encountered a great deal of difficulties on the road to treatment. With input from other patients worldwide, they realized that primary aldosteronism was not the rare disease they were told they had, and that instead, primary aldosteronism was "under-diagnosed" and "under-treated" which, in turn, was limiting the chances to see research bring better understanding of and more effective ways to treat the disease. The Primary Aldosteronism Foundation was created to help address these issues with an inclusive model involving researchers, clinicians and patients.

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